Day 21: Livy

I want you to meet someone remarkable today. Her name is Livy. At 22 months Livy was diagnosed with Gorlin Syndrome; this is a genetic syndrome that causes the body to create cancerous and noncancerous tumors to grow.

Livy

In August of 2015, Livy was diagnosed with brain tumors or medulloblastomas. She can not tolerate radiation treatments, so the only avenue that her family has to help her is with chemotherapy treatments. Livy’s syndrome and cancer make her treatment a very rare case.

Two members of the Gilroy, Morgan Hill Community nominated Livy. Her father attended Live Oak High School with one and the other was a family friend. They wanted to do something to reach out, to let this family know that many people were praying for them as they travelled this unthinkable journey.

The Go Fund Me Page sums up their journey best,

“There is no real ‘cure’ for many pediatric brain tumors, many of the choices facing the parents of children inflicted with the form of pediatric brain cancer Livy is facing are ‘the devils choices’ as one of her doctors put it. A few of the largest hurdles you must overcome when you are put face to face with this disease are the lack of awareness, lack of funding for research and cures, and the general support needed to make the decisions that will impact a young life forever.”

If you want to donate this is the link for her Go Fund Me page: https://www.gofundme.com/livysjourney

Our elves were able to make sure that Livy had a handmade scarf and hat to keep her warm on her trips and stay in UCSF. They also helped get her a frozen dress, shoes and a Frozen Castle. We were told she liked that Disney movie.

We are praying for Livy and her family every day.

Until there is a cure…

Michelle and the Holiday Cheer Elves

Day 17: Meet Vanessa

Day 17: Meet Vanessa

“Do your little bit of good where you are; it’s those little bits of good put together that overwhelm the world” – Desmond Tutu

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Okay so today I am going to get up on my soapbox a little bit for this one. Pediatric cancer is a cause that is near and dear to my family. I know too many lives that have been forever altered by this disease. Did you know that 3 new medicines have been created for pediatric cancer in the last 20 years and that 23 new medicines were created for adults in 2012 alone? And as you saw from the stats above there is little funding that goes toward pediatric cancer from the government or other existing cancer organizations. Unravel, which I have spoken about before is an organization that specifically raises money for pediatric cancer. We need to start paying attention to these stats and to the faces of pediatric cancer and start saving their lives.

Today’s recipient is fighting cancer and if you noticed we had an earlier recipient that is fighting pediatric cancer and we have another one I haven’t yet written to you about. Bottom line there are too many children that are fighting this disease to have only 3 types of medicine to fight it and very little funding to back new research.

And now as I step down from my soap box that brings me to Vanessa. Readers meet Vanessa.

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Vanessa  recently had her leg amputated as part of her battle with this disease. Shaleen nominated Vanessa and had this to say about her, “I have seen some of her journey on FB and it is truly amazing to see her bright smile in every single picture whether she is out and about in her wheel chair or in the hospital bed. Her huge family has been right by her side through this all. To see the love they have for Vanessa and the strength they all have is amazing!”

 

When Shaleen told Vanessa’s aunt that she had been nominated and was chosen to receive a gift she was so touched.  She wrote in to say, “[T]hank you so much. It’s definitely been tough, but she’s still here with us and despite what she’s gone and going through she’s in good spirits. She’s a tough cookie !” She also let us know that she really wanted an American Girl doll. What happened next brought Shaleen and I to tears.

I posted on my FB group page that we needed an American Girl doll for a recipient that was battling cancer. I had two donations within 10 minutes. The sense of joy and gratefulness that encapsulated my heart was indescribable. You have already seen that Elayna received one of the dolls (click here to read about it in case you haven’t read that post yet) and Vanessa was given a doll as well. Then what was even more special is my friend Rebecca heard about who the recipients were and she told her mom who then made scarves and hats for all the girls and tons of doll clothes! You elves are one amazing bunch that is for sure!

 

It gets better…Katie who donated the doll, movie, and one of the outfits took her girls with her so they could share in the Holiday Cheer and learn about doing something good for others. Check it out…

Then this transpired on Facebook after the delivery of the gift and I just had to share because this is what holiday cheer is all about!

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Speechless yet…yeah I was, too.

I know I speak for all of us when I say we are sending prayers and thoughts of supreme strength to Vanessa and her family. She is a brave soul who is definitely one tough cookie. We hope that the gift brought her some joy and let her know that there are so many people rooting for her, so many people whose lives she has touched.

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Until there is a cure,

Shaleen, Katie, Rebecca, Michelle and the holiday cheer elves

P.S. to learn more about Unravel click here.

 

Day 14: She is the perfect combination of Princess and Warrior

 

I am so excited to introduce you all to Elayna. She is absolutely radiant! I first came into contact with Elayna and her mom, Lucy while our family was fluttering in September for Unravel. (If you haven’t heard about Unravel yet is an organization that was founded to help raise funds for pediatric cancer research and you can learn more here). Elayna is a cancer survivor and she wanted to be a part of the Unravel Fluttering Campaign to help children like her. Her mom shared pictures and videos via a group on FB and well…we all just got to know her so well. Her vibrant, energetic passion and love of life was contagious to say the least. I mean just look at this kid!

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At 6 she has already beat kidney cancer and was 9 months into remission when I “met” her via the Unravel Fluttering Facebook Group. What happened next was heartbreaking. This princess warrior was diagnosed with lung cancer. Elayna and her family are once again fighting a battle against cancer.

There are two fundraising pages for Elayna in case you are interested in helping her and her family since I know many of you have asked how you can help more:

Her new gofundme page is at: https://www.gofundme.com/Elayna

Her original youcaring page (which is still set up and working!) is at:https://www.youcaring.com/medi…/let-s-go-team-elayna-/171690

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What was amazing was that a pair of donors came forward that wanted to get Elayna an American Girl doll. Not only did they get her a doll they also purchased matching pjs for her and the doll, the movie, book and accessories for the doll. I was in awe of their generosity. We also had someone hand make a scarf and matching hat for Elayna.

Elayna’s mom Lucy had this to say about the gift once it was delivered,

“This girl is so loved. Thank you so much for caring enough about her fight and her path to want to send her some joy like this. I looooove the frame picture. And the hat and scarf are sure to be favorites right away. 💕 Elayna has never had a “real” doll before and it was hilarious to see that she didn’t know what you did with one at first when she unwrapped Kit. When I explained all the things you could do with her (and that she came with a story and all) she said ‘Can you even put pjs on them?’ And I said, ‘I’m sure we can get pjs someday for her.’ Then she couldn’t stop smiling and giggling when she opened the pajamas next. Ha! Please thank everyone who was involved in Elayna’s gifts. We are so touched by the generous spirit.”

Thank you so much, Holiday Cheer Elves: Bella, Kim and Rebecca for bringing a smile to Elayna’s face.
All of the Holiday Cheer Elves are praying and cheering for Team Elayna.
Sincerely,
The Holiday Cheer Elves