I want you to meet someone remarkable today. Her name is Livy. At 22 months Livy was diagnosed with Gorlin Syndrome; this is a genetic syndrome that causes the body to create cancerous and noncancerous tumors to grow.
In August of 2015, Livy was diagnosed with brain tumors or medulloblastomas. She can not tolerate radiation treatments, so the only avenue that her family has to help her is with chemotherapy treatments. Livy’s syndrome and cancer make her treatment a very rare case.
Two members of the Gilroy, Morgan Hill Community nominated Livy. Her father attended Live Oak High School with one and the other was a family friend. They wanted to do something to reach out, to let this family know that many people were praying for them as they travelled this unthinkable journey.
The Go Fund Me Page sums up their journey best,
“There is no real ‘cure’ for many pediatric brain tumors, many of the choices facing the parents of children inflicted with the form of pediatric brain cancer Livy is facing are ‘the devils choices’ as one of her doctors put it. A few of the largest hurdles you must overcome when you are put face to face with this disease are the lack of awareness, lack of funding for research and cures, and the general support needed to make the decisions that will impact a young life forever.”
If you want to donate this is the link for her Go Fund Me page: https://www.gofundme.com/livysjourney
Our elves were able to make sure that Livy had a handmade scarf and hat to keep her warm on her trips and stay in UCSF. They also helped get her a frozen dress, shoes and a Frozen Castle. We were told she liked that Disney movie.
We are praying for Livy and her family every day.
Until there is a cure…
Michelle and the Holiday Cheer Elves